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Hello All: How Do You Get A Dr (specify Specialist) To Order A RHC? And What Do They See In Other Tests That Make Them Order This?

A myPHteam Member asked a question 💭
Virginia Beach, VA

Note: undiagnosed but have had most of the tests but this in last year. mmHg is 30 as of last week on an ECHO. Other factors to think PH along with all Symptoms but weight loss. Instead weight gain quickly.

July 24, 2024
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A myPHteam Member

Kelly, excess fluid is from venous backup as the heart isn't able to pump to the lungs normally. Fluid backs up to several abdominal veins, especially the liver.

July 30, 2024
A myPHteam Member

If I remember correctly you also have left heart symptoms. Have you had a left heart cath? Symptoms go in both directions. Try and be patient even though it's so frustrating. Some of the PH specialty meds won't be prescribed without certain number outcomes.
Day by day, Kelly.

July 28, 2024
A myPHteam Member

Can you get an appointment with an actual PH Specialist? Part of what they do is rule out and rule in. Even try just calling one cold and explaining...crying if you have to.

July 28, 2024
A myPHteam Member

I'll read it through later on. My conversation with my doctors took place summer of '23

July 24, 2024
A myPHteam Member

Heather, just take a look at the new posts on American Heart Association. Also, Jay just sent a link. Plus about 20 other places who have dropped the limits down. Some stating this that it was higher in past. I’m just saying, if I feel close to death now and they don’t bother to do the test till say, next year. And I am diagnosed then, did I just lose 3 years from me having to wait a year? The way I read it, and I read for hours. I also try to sift out the bull sites and weigh what I read against each other. Something must have changed for them to say “the new” numbers are…. One was dated May or June this year.

July 24, 2024

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