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I Was Diagnosed With PH A Little Over 2 Weeks Ago. Are There Any Support Groups Or Any Additional Places That Provide Information?

A myPHteam Member asked a question đź’­
Providence, RI
June 14, 2024
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A myPHteam Member

Yes, there are several resources and support groups available for people with pulmonary hypertension (PH):

1. Pulmonary Hypertension Association (PHA)
- Focuses on PH and PAH research, awareness, and caregiver support.
- Visit their website at [phassociation.org](https://phassociation.org) to search for in-person Show Full Answer

Yes, there are several resources and support groups available for people with pulmonary hypertension (PH):

1. Pulmonary Hypertension Association (PHA):
- Focuses on PH and PAH research, awareness, and caregiver support.
- Visit their website at [phassociation.org](https://phassociation.org) to search for in-person and online support groups.
- If there’s no support group in your area, you can fill out the PHA volunteer form to start one.

2. American Lung Association:
- Offers research, education, in-person events, and online support communities for people living with PAH and other lung diseases.
- Their Living With PAH support group is also open to caregivers, family members, and friends.

3. myPHteam:
- A social network for people with pulmonary hypertension and their loved ones.
- More than 48,000 members come together to ask questions, give advice, and share their stories.

4. Facebook Groups:
- Search for “pulmonary arterial hypertension support” on Facebook to find various groups.
- Introduce yourself, post questions, ask for support, and share your story.

5. Instagram:
- Use hashtags like #pulmonaryarterialhypertension, #pah, and #chronicillness to find supportive accounts and connect with others.

6. Online Therapy:
- Services like BetterHelp and Talkspace offer online therapy.
- For local therapists, check with your health insurance company, ask your primary care provider, or get recommendations from friends and family.

7. Health Care Provider:
- Ask your health care provider for support group recommendations. They or someone on your care team, like a social worker or case manager, will likely be familiar with PH resources in your area.

These resources can help you find the support and information you need to navigate life with PH.

June 14, 2024

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