I just turned 61 on February 14. I don't know anyone that have either one neither. Inever even heard of Scleroderma until I was diagnosed with it in 2016 and I didn't hear of PAH until then. Thats when I read that Scleroderma could cause PAH. And My Rheumatologist mentioned PAH also. How is the Meds working for you?

Just starting on this medication Am on Opsumit Thanks for the I information It’s tough having both conditions I understand how you can be depressed, I hope they find something to help you Hang in there

I also have PAH with scleroderma. I was first diagnosed in 2015 with scleroderma, ILD in 2018 and stated on 2L of oxygen. In 2019 PAH. Started on sildenophil and than switched to tadalophil. Oxygen saturation improved and I wasn't using oxygen as much. In August started Tyvaso DPI and have gone downhill. Now probably going to 6L oxygen. I have a pulmonary evaluation tomorrow. I am very depressed about this. Anyone else have experience with Tyvaso and is it helping?

I also did not have side effects with Opsumit I did have lots of side effects with Sildenafil
I have Scleroderma as well Diagnosed in July 2023

I had no side effects with opsumit. However, Adempas lowers my blood pressure. This medicine comes with a BP cuff!!😳