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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have Raynaud's Phenomenon? I Have PH And My Fingers From The Knuckles Up Are Much Lighter Than Below The Knuckle.

A myPHteam Member asked a question 💭
Twentynine Palms, CA
December 28, 2023
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A myPHteam Member

Hi I have seen someone that has this and they got better taking supplements.

December 31, 2023
A myPHteam Member

I have this problem when my hands and fingers get cold. Usually it's only on a couple of fingers.

December 30, 2023
A myPHteam Member

@A myPHteam Member you are very welcome. If you think about it, it makes sense that if the blood vessels in our lungs are narrowing, reducing blood flow that this can happen in other parts of the body as well. In fact, my rheumatologist has referred me to a vascular specialist. I have a lot of leg pain. After examining my legs, she suspects I may have vascular insufficiency.

January 1, 2024
A myPHteam Member

All my fingers from the knuckles up are pale compared to my lower fingers. They stay that way, but there are times my inner fingers turn bluish and then red. I really thank you for answering my question. Happy New Year to you Christine!!!😊

December 31, 2023
A myPHteam Member

I have PAH and an autoimmune disease called Sjogren's. Raynaud's is common with both conditions. It affects my hands and feet. Both will get very cold. I glove when I am outside during even cool weather, wear socks, and keep a heating pad close by.

December 31, 2023

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