@A myPHteam Member I know this post is old and I hope you got further evaluation and treatment by now. If not, I’ve since changed my perspective on this. My cardiologist stopped treatment after a stroke (due to not compatible with stroke meds) and then we never tested again or treated and my symptoms got worse. After my last hospitalization- pulmonary issues and recommended to follow-up re PH outpatient, I decided to go see a dedicated PH clinic (Mayo Jacksonville). I’m still waiting for my appointment in Feb, but I think I made a mistake by not doing this at the first echo that showed PH. I would highly recommend full evaluation at a PH clinic of excellence if you have not done so already.

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A myPHtea...

I would highly recommend you see a cardiologist specializing in PH if your current cardiologist does not treat PH. You have a complex medical history (like most on here) and treating the underlying conditions will probably also help your PH levels. The right treatment can help a lot.

I'm happy this is helpful and thank you. I would definitely ask my doctor about the PH: What is the cause of it and how he plans to treat it. He might consider doing a RHC to get accurate pulmonary pressure (RHC is the gold standard as it is much more accurate than echo, but not all doctors will order it). I would be very surprised if he does not do anything to further diagnose or treat it. If that is the case, I would definitely go see a Cardiologist specializing in PH. What I did, was when I saw it on my echo, I looked up my cardiologist to see if she have any experience in PH. I saw that it is not something she usually treat. Then I looked up to find a cardiologist in my area that is experienced in PH (found one in a nearby city). When I saw my normal cardiologist and realized that she is unsure how to treat or further diagnosed it (and that her plan was to wait and see), I made an appointment with the specialist and I am very happy I did that. If your cardiologist is on top of the PH, I would also ask him the type and group. There are 5 types and the treatment is different for each type. There are 4 levels. I would ask what level you are. Sometimes if an underlying condition is causing it, treating the condition will also lower the pressure. If this is the case, I will also ask when he will do a follow up test to see if the pressure is improving. If he plan to do nothing and an 1 year from now echo follow-up, you need to go see a specialist (cardiologist) in PH as this needs to be treated and you do not want to wait. I read that 50% of pulmonologists and cardiologist do not know how to treat PH and often delay treatment because of this (you do not want to delay treatment). If it seems like your cardiologist is unsure about treatment and especially if his plan is to wait and see, see someone else. You can keep seeing your cardiologist for your other conditions, but have a PH specialist work with him on the PH part of it.

Sounds similar. Started out mild and was given amloDipine. Last echo my pressure went up. Had a BNP blood test and I was head
Ing into heart failure only after that I was sent to a new cardio doctor that know about PH