Connect with others who understand.

Sign up Log in
Resources
About myPHteam
Powered By
See answer

Your Answers: The Worst PH Advice (Infographic)

Posted on November 29, 2018

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("Just get moving") to the plain unhelpful ("Try to relax more"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • Just take a deep breath
  • But you look so well
  • Take your time
  • Why are you so tired all the time?
  • Try to relax more
  • Join a gym. It will be fun.
  • Your medications don't cure it?


Everyone's situation is different and not all of these apply to each person. Tell us: What advice about pulmonary hypertension do YOU wish people would stop telling you?

Posted on November 29, 2018

A myPHteam Member

I am 34 and I am doing better with my medication so the doctor said I can start looking for a job. However some days I have zero energy. It could be emotional because I feel isolated in my home… read more

October 15
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy

Recent Articles

If you’re trying to lose weight, your doctor may prescribe a weight-loss drug called phentermine ...

Can Phentermine Cause Headache With PH?

If you’re trying to lose weight, your doctor may prescribe a weight-loss drug called phentermine ...
Tricuspid regurgitation, or tricuspid valve regurgitation, is a medical condition in which the he...

Tricuspid Regurgitation and Pulmonary Hypertension: What’s the Connection?

Tricuspid regurgitation, or tricuspid valve regurgitation, is a medical condition in which the he...
Fluid retention in the belly (ascites) and an accumulation of fluid in the hands and feet (periph...

Can Water Retention Cause High Blood Pressure With PH? What You Should Know

Fluid retention in the belly (ascites) and an accumulation of fluid in the hands and feet (periph...
Cold hands and color changes in the fingers are a familiar annoyance for some, but for people wit...

Can Raynaud’s Phenomenon Cause High Blood Pressure?

Cold hands and color changes in the fingers are a familiar annoyance for some, but for people wit...
Hearing your heartbeat whooshing or thumping over and over in one ear can be disconcerting. While...

Are You Hearing Your Heartbeat in Only One Ear? 7 Causes

Hearing your heartbeat whooshing or thumping over and over in one ear can be disconcerting. While...
Pulmonary hypertension (PH) is a chronic condition affecting the lungs, leading to symptoms such ...

Nitric Oxide for Pulmonary Hypertension: Uses, Drug Interactions, and Blood Thinners

Pulmonary hypertension (PH) is a chronic condition affecting the lungs, leading to symptoms such ...

Thank you for subscribing!

Become a member to get even more: