We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.
What did we learn? From the unconcerned ("Just get moving") to the plain unhelpful ("Try to relax more"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.
Some of the most common answers we heard:
Everyone's situation is different and not all of these apply to each person. Tell us: What advice about pulmonary hypertension do YOU wish people would stop telling you?
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I am 34 and I am doing better with my medication so the doctor said I can start looking for a job. However some days I have zero energy. It could be emotional because I feel isolated in my home… read more
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