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Beginner's Mind - Not Knowing It All When Living with Pulmonary Hypertension

Posted on July 27, 2018


"The moment I received my official diagnosis, I dropped all my assumptions about PH. It was so freeing." -Member of myPHteam

Living with a chronic condition can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know.

Have you heard the saying, "People don't get it until they get it"? That is so true about PH.

"The more I learn about PH, the more I realize that it's not my fault." -Member of
myPHteam

A PH diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on myPHteam gain perspective from other members' experiences to become better informed about what it's really like to live with PH.

Here are recent conversations from members of myPHteam:


What negative assumptions have you let go of about PH? Tell us about it in the comments below or directly on myPHteam.com.

A myPHteam Member

TimCraig. You are so right. A lot of people think that oxygen helps them get their breath and breath like normal. It might give relief for various reasons however. I’ve seen people ask their… read more

May 11, 2022
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