I have heart disease and have a cardiologist. My pulmonary specialist and cardiologist both consult with each other.

Yes, I have a Cardiologist. He is part of my PAH clinic as well as three Pulmonologists who all specialize in PAH. I see them on rotation every 6-9 months. There is also a PAH trained RN who does all the coordinating and is always on the other end of the phone to handle any concerns I may have, bloodwork requistions and arranges for all testing such as Echocardiograms and RHC among others. Couldn't ask for a better team. They also work with my Rheumatologist/Scleroderma Specialist who is also well versed in PAH, and is considered part of my team. All information is shared.

I go to a Pulmonary/Cardiology Clinic where I see a Pulmonary Doctor and a Cardiologist. Having PAH has caused me to have right side heart failure. Both doctors work hand in hand to give me the best care designed for me. I see the doctors atleast twice a year and the rest of the time I see the nurse practioner (about twice a year ). The only down thing for me is the travel time as it takes about an hour to get there. If I were younger it would be no problem, but my husband and I are both in our 70's so driving on the expressway is a bit scary. The joys of getting old...lol

or effort & time if it aint nothing but a waste of time. Lisa & the others are probably just monitoring the conversations to make sure no one posts anything that would go against the terms of use & rules for the site, I should have known she wouldn't have any pull just my luck. It sounds like whoever the super duper powers that be only make any changes to the website if the idea is something they totally support, not what members support.

Kris, I didn't realize that uour mother also has PH. I hope once you have a reliable and knowledgeable Dr that you discuss this with them. You could have inheritable PH. Not sure if it would make a difference in how they treat it ir not.