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I don't, and was told I didn't need one.

January 27, 2025
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Answer Summary

Members shared their experiences around the question of whether PAH patients need a cardiologist, with most agreeing that having both a... Read more

Members shared their experiences around the question of whether PAH patients need a cardiologist, with most agreeing that having both a cardiologist and a pulmonologist provides the best care. Several members described coordinated care teams at specialized PH clinics where doctors share information, rotate visits, and work alongside nurse practitioners to manage both heart and lung health together. A recurring theme was that PAH puts strain on the right side of the heart, making cardiac monitoring important, and many encouraged others to seek out PH-certified clinics and specialists who truly understand the condition.

A myPHteam Member

I have heart disease and have a cardiologist. My pulmonary specialist and cardiologist both consult with each other.

January 30, 2025
A myPHteam Member

A true PH specialist has to know both heart and lung. But I found that having the PH specialist PLUS a regular cardiologist and a regular pulmonologist is very helpful and all 3 share information with each other.

January 27, 2025
A myPHteam Member

Yes, I have a Cardiologist. He is part of my PAH clinic as well as three Pulmonologists who all specialize in PAH. I see them on rotation every 6-9 months. There is also a PAH trained RN who does all the coordinating and is always on the other end of the phone to handle any concerns I may have, bloodwork requistions and arranges for all testing such as Echocardiograms and RHC among others. Couldn't ask for a better team. They also work with my Rheumatologist/Scleroderma Specialist who is also well versed in PAH, and is considered part of my team. All information is shared.

January 27, 2025
A myPHteam Member

I go to a Pulmonary/Cardiology Clinic where I see a Pulmonary Doctor and a Cardiologist. Having PAH has caused me to have right side heart failure. Both doctors work hand in hand to give me the best care designed for me. I see the doctors atleast twice a year and the rest of the time I see the nurse practioner (about twice a year ). The only down thing for me is the travel time as it takes about an hour to get there. If I were younger it would be no problem, but my husband and I are both in our 70's so driving on the expressway is a bit scary. The joys of getting old...lol

January 27, 2025
A myPHteam Member

I do

February 13, 2025

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