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What Is The Biggest Obstacle Which Has Rendered You Tired Of Explaining, When Telling People You Have PH, & PAH
I start with informing them I have a dual lung condition. COPD, when you tell them that no big deal everyone knows that. Then I go on to tell them PAH, Pulmonary Arterial Hypertension. They assume it's high blood pressure because that's what hypertension is, however, when I explain it's not the kind of high blood pressure everyone knows. I explain the part about High blood pressure in the artery between the heart & lungs. At this point, they get a dumbfounded look on their face. I used to… read more
I tell people I have a disease that progressively destroys my pulmonary arteries and it’s called Pulmonary Hypertension and that it was caused by my heart disease.
I try to explain my condition in as few words as possible and
if they still don’t understand, then I direct them to google it
I agree that it's exhausting. My husband has trouble understanding PAH and how it affects the body, and he lives with me! I cringe whenever I hear him trying to explain PAH to someone else.
I usually tell people that Sjogren's is destroying the tiny blood vessels in my lungs and my pulmonary artery.
Same here. I usually just say I can't breath. Which affects my heart. It isn't really correct but they don't question that. If I tell them I have PH, they assume its just high blood pressure. So simple is best. Hugs.
@A myPHteam Member that is an excellent response! I think I'll try employing that tactic too.
Does Ph Effect Vision
My Cardio Said My PH Is Bad, But The Pulmonologist Said Meds Don't Help And Send Me Back To Cardio. Is This Common?
I Live In Placida, Florida, Near Port Charlotte And Venice, And I’m Looking For A Cardiologist Who Has Experience With PAH Patients.
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