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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My PH Was Confirmed With A Right Heart Catheterization, But My Doctor, A Cardiologist Did Not Do A 6-minute Walk Test.

A myPHteam Member asked a question 💭
Pensacola, FL

He said I don’t need to make any dietary or other changes and to follow up with my pulmonologist. I sometimes have difficulty breathing even with. 2-3 liters of O2 and it. Takes me longer to recover at rest. Sometimes I vomit. I am 76 years old and have previously been diagnosed with COPD, but my PH doctor does not think is accurate. My PH diagnosis is new.

I see my pulmonologist next week, and, aside from the obvious, I don’t know what I need to ask him.

January 18
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A myPHteam Member

Now, I am not a medical professional, and I don't know what your PH numbers are. But I think you need to be in the care of an actual PH Specialist. 6 minute walks are standard for PH patients and are done at regular intervals. In fact, the insurance company for any eventual specialty medications may require the results from those 6 minute tests in order for you to qualify or get approved. Those tests are also a non-invasive way for your specialist to track your progress. Dietary restrictions are also standard. Aside from the low sodium aspect, there are fluid intake restrictions (mine is 2 liters/day) and you should not have any caffeine (tea, coffee, chocolate, or cola)

January 18
A myPHteam Member

Reduced sodium is a very important dietary change. It has made a world of difference. I have never had a 6 minute test. Maybe it's not needed for your diagnosis. Sorry you have all these health problems.

January 18
A myPHteam Member

Ask whatever comes to your mind. Ask about symptoms, ask about medicines, ask about how to continue your daily life in light of this diagnosis.
Good luck to you.

January 18
A myPHteam Member

It’s great that you’re preparing for your pulmonologist visit. Here are some questions you might consider asking to guide your discussion about your pulmonary hypertension (PH):

1. How can I manage my difficulty breathing and recovery time at rest
2. Should I undergo a 6-minute walk test or other assessments to monitor Show Full Answer

It’s great that you’re preparing for your pulmonologist visit. Here are some questions you might consider asking to guide your discussion about your pulmonary hypertension (PH):

1. How can I manage my difficulty breathing and recovery time at rest?
2. Should I undergo a 6-minute walk test or other assessments to monitor my PH?
3. What lifestyle changes, if any, would benefit my condition?
4. Are there specific treatments or therapies to address my symptoms, like vomiting or oxygen needs?
5. How often should I follow up, and what tests will be needed to track my PH progression?
6. Could pulmonary rehabilitation help improve my breathing and quality of life?
7. What should I do if my symptoms worsen suddenly?

These questions can help you feel more informed and in control of your care.

January 18

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