Connect with others who understand.

Sign up Log in
Resources
About myPHteam
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone With PH Experienced Dysautonomia. A Dysfunction Of The Nerves That Regulate Nonvoluntary Body Functions, Such As Heart Rate, Bp.

A myPHteam Member asked a question 💭
Roswell, GA
September 17, 2024
Be the first to like/hug
A myPHteam Member

No wonder you've developed PH!
Me too, on the upside Christine we're still here to complain about it😁
Sadly many aren't!

September 20, 2024
A myPHteam Member

https://www.nature.com/articles/s41582-023-00917-9
Hi Christine, another reference to long Covid induced dysautonomia.

September 18, 2024
A myPHteam Member

That is very concerning ChristineS. I take 50mg and have a 25mg back up. I have SVT pretty bad. Still daily occurrences even on meds. Covid messed me up. High BP (as high as 224/135? ) I take 10 mg of Anelodepien (shoot even spell check can’t get that right). lol. Hey Alex. Love you alway have great literature for us!!!

September 23, 2024
A myPHteam Member

@A myPHteam Member I was on metoprolol for years. I was put on it to help with migraines originally 100mg and then lowered to 50 mg. I developed PAH and my BP dropped, it went down to 68/36. They lowered my dose 25 mg, and I had to wear a cardiac event monitor. Still Bp was low, so they had to take me off the medicine completely (it's one of those meds you have to be weaned off) and I wore the monitor again for over a month. Now with the PAH meds I have to also take a medication called Midodrine that raises my bp. I take it three times a day, but at least the pressure now runs about 110/65. If I take my Bp before I take my morning meds it's in the high 80's low 90's. Be careful and watch your BP. I had to take my bp three times a day and now it's just once a day but still concerning.

September 20, 2024
A myPHteam Member

Kell83...... I've had Covid 3 times

September 20, 2024

Related content

View All

What Is More Uncomfortable For You…shortness Of Breath Or Rapid Heart Rate?

A myPHteam Member asked a question 💭
Sterling, CO

How Do You Know What Stage Your Pah Is At

A myPHteam Member asked a question 💭
Casper, WY

What Would Be My Best Form Of Beginning Treatment?

A myPHteam Member asked a question 💭
Silver City, NM
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in