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How Long Can I Live With PH

A myPHteam Member asked a question 💭
Rocky Mount, NC
July 8, 2024
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A myPHteam Member

I have to disagree with the answer above from that AI automatic generated thingy. It states right away that idiopathic pulmonary arterial hypertension has a basic life expectancy of two to three years after diagnosis. That's what I found when I first got diagnosed when I googled it and that is just not correct if you're on medication. If you get the right medication I've been alive a lot longer than two or three years and I went around thinking all I had was 2 years to live. I think that that just needs to be changed. It shouldn't be putting that message out to people on this web group.
Okay I'm calmed down now I just get really upset when I hear and read about that two to three year thing. Because that's the only information I had to go on when I first got diagnosed and that's how I lived my life for a long time thinking I was going to be dead in 2 years and it's just not that way and that message just needs to stop being put out there to people and I feel so strongly about this that can't even explain it.

July 10, 2024
A myPHteam Member

I agree with you and thank you for that information. I have just pulmonary hypertension is what I’m being told but I also have heart disease. I’ve already had two aortic valve replacements and an aortic valve aneurysm corrected. Ideal everyday with several heart issues but I thank God for each day He gives me.

July 10, 2024
A myPHteam Member

There is no way to really answer this question as we are each different. Life expectancy can be impacted by overall health, progression of disease, response to medications, and other comorbidities. It is important to focus on the here and now but also prepare appropriately for the end by discussing your wishes with your loved ones, preparing a will, advanced directives, a durable medical power of attorney, and a financial power of attorney.

July 10, 2024
A myPHteam Member

The life expectancy for someone with pulmonary hypertension (PH) can vary based on several factors:

- Type of PH: Different types of PH have different prognoses. For example, idiopathic pulmonary arterial hypertension (IPAH) has a poor prognosis if left untreated, with an average survival rate of two to three years after Show Full Answer

The life expectancy for someone with pulmonary hypertension (PH) can vary based on several factors:

- Type of PH: Different types of PH have different prognoses. For example, idiopathic pulmonary arterial hypertension (IPAH) has a poor prognosis if left untreated, with an average survival rate of two to three years after diagnosis.
- Functional Class: Those with class 4 PAH are at high risk and may have an average survival of less than six months if untreated.
- Right Ventricular Function: The health of the right ventricle of the heart is a significant predictor of survival.
- Treatment: Recent advancements in treatment have extended life expectancy to seven years or more for many people with PAH. Some people with low-risk features can expect to live more than 10 years.
- Early Diagnosis and Treatment: Getting diagnosed and treated early can improve both life expectancy and quality of life.

Overall, newer treatments continue to increase life expectancy for people with PH.

July 8, 2024

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