I actually had a long reply. Sorry. I broke into two segments. I don’t see part 1. Let me know if you got Botha. Thanks-

1) Swelling- feet to head now. Terribly. I am having days where I feel like calves are leaking water. Started off feet and calves 2020.
2) Trouble breathing - now with most anything I do. Walking 20 feet, standing longer than 5 minutes in one spot, doing dishes etc. showering, any exercise at all. This was bad after Covid in 2/21 but got better. Now back to worse.
3) Sweating- I sweat (especially face and neck) for the slightest things, like doing my hair. I keep my house at 64 degrees. Just to open door and walk out in summer I am drenched and can’t breath.
4) cough- usually at night but now throughout day as well. Wet cough typically.
5) weight gain- omg. This has been the worst. I’m gained 100 pounds in last 3 years. I was super active prior to being sick. Dancing and going everywhere all the time. Never sat still.
6) chest pain- sometimes dull ache in front but other times, a full blown attack that permeates to middle of shoulder blades in back. Lasting up to an hour. Feels like gallbladder attack, but isn’t. That’s been removed. Rushed to ER at least 3 times and they say no to heart attack as well. Never knowing what causes that.
7) heart beating hard- I can see it in my chest through clothes. Also in my stomach.
8) Pains in my side near liver area- say I have a little bit of fatty liver but no damages.
9) heart arrhythmia- skips beats or speeds up. I have SVT.
10) swollen stomach- with weight gain my stomach has seemed to take on a good portion of my weight. Feel bloated all the time.
11) severe sleep apnea- diagnosed after Covid breathing issues. I can’t wear a CPAP. I just use nasal spray to keep my nose clear and sleep on my side but could use other options.
12) just plain tired - I get exhausted walking to bathroom or kitchen. Vacuuming floor, takes a week lol. I hate that.
13) I have insomnia- have had this for years. I take ambien plus other sleep aids just to fall asleep.
14) body aches. - losing muscle tone more and more each day. I was very fit. Now just fat. 🥲
15) MRI of Heart - slight thickening but I’m not sure which side they said. I will have to look.
16) auto immune issues- not sure of what the exact diagnosis is with this but looking at a file from 2020 I see this mentioned and will ask about it.

Wore halter monitor for 2 weeks in last year. SVT, and arrhythmia noted.

I am sure there is more but this comes to mind. Any input or questions appreciated!!!

Sorry I wrote you a book. I’m just in that question stage. The problem is, I feel like I could die before I ever find out! My symptoms keep growing but no disease diagnosis. I sure hope this Dr next week breaks the crazy cycle for me. lol.

Thanks so very much!
Kelly

Kelly83:
I really don't see the connection with PH and bad knees and back. They are not usual symptoms of PH. However, if you have autoimmune disease such as Scleroderma, Lupus and Rheumatoid Arthritis that could possibly be an answer. Many of us have autoimmune issues that caused our PAH and may be suffering issues such as you mentioned. I would consult with my PCP to find out if you may have autoimmune disease. If you know you do, then I would suggest you give your Rheumatologist a call.