Meds
Has anyone ever been put on any antiinflammatory meds for PH or PAH?
You’d have to take all that up with your doc. I can only speak to my situation. I have RA which kicked off the PAH. So because it is affecting my lungs, my RA doc doesn’t feel it’s safe enough to go on biologics, so I’m on a med for my RA (Leflunomide) and also that little dose of prednisone to keep my RA flares at bay. I don’t have allergies so I don’t know they say about that. Make your list of questions for your next appointment, or send them in on the on-line doc portal, if it’s available to you. It’s a mess, I know. Just when I think I know what I’m doing, I find out the light at the end of the tunnel is a freakin’ runaway freight train!
@A myPHteam Member I would do a low dose anti inflammatory med if it would help. I think allergy immunotherapy shots caused inflammation and I told them my symptoms but getting a doctor to believe a person.
@A myPHteam Member I had pain when I stopped allergy immunotherapy shots. Iwas wheezing and was put on flovent and albuterol by allergy clinic. The pulmonologists said no asthma to stop taking meds. I tried several times last fall and couldn't, finally in Dec. I was able to stop meds and was symptom free for 3 months until spring,the it started out again. I asked pulmonologists for predisone or do flovent again,he let me do flovent,but I was low dose and I think he should of did predisone. He told me when he wanted to quit the flovent that that's for inflammation. What I don't get shouldn't that have told him I had inflammation in my body. I feel like he didn't believe me because my asthma tests said negative. I had symptoms after the methacholine challenge test.
Linda, I am on anti-inflammatory meds for my really bad RA, but not forPAH. I take leflunomide and a “tiny” 5mg prednisone every other day to keep me from laying in the corner in a fetal position from the pain! The prednisone will probably circle back around to bite my butt one day, but right now, I don’t care. Have your docs put you on (or want to) anti-inflammatory for your PAH?
If you're having trouble affording your pulmonary arterial hypertension (PAH) medications, here are some tips that might help:
1. Copay Assistance Programs
- Many drug manufacturers offer financial support programs. For example, Janssen CarePath helps cover costs for macitentan (Opsumit) for eligible health insurance Show Full Answer
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