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Meds

A myPHteam Member asked a question 💭
Victoria, KS

Has anyone ever been put on any antiinflammatory meds for PH or PAH?

June 14, 2024
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A myPHteam Member

You’d have to take all that up with your doc. I can only speak to my situation. I have RA which kicked off the PAH. So because it is affecting my lungs, my RA doc doesn’t feel it’s safe enough to go on biologics, so I’m on a med for my RA (Leflunomide) and also that little dose of prednisone to keep my RA flares at bay. I don’t have allergies so I don’t know they say about that. Make your list of questions for your next appointment, or send them in on the on-line doc portal, if it’s available to you. It’s a mess, I know. Just when I think I know what I’m doing, I find out the light at the end of the tunnel is a freakin’ runaway freight train!

June 14, 2024
A myPHteam Member

@A myPHteam Member I would do a low dose anti inflammatory med if it would help. I think allergy immunotherapy shots caused inflammation and I told them my symptoms but getting a doctor to believe a person.

June 14, 2024
A myPHteam Member

@A myPHteam Member I had pain when I stopped allergy immunotherapy shots. Iwas wheezing and was put on flovent and albuterol by allergy clinic. The pulmonologists said no asthma to stop taking meds. I tried several times last fall and couldn't, finally in Dec. I was able to stop meds and was symptom free for 3 months until spring,the it started out again. I asked pulmonologists for predisone or do flovent again,he let me do flovent,but I was low dose and I think he should of did predisone. He told me when he wanted to quit the flovent that that's for inflammation. What I don't get shouldn't that have told him I had inflammation in my body. I feel like he didn't believe me because my asthma tests said negative. I had symptoms after the methacholine challenge test.

June 14, 2024
A myPHteam Member

Linda, I am on anti-inflammatory meds for my really bad RA, but not forPAH. I take leflunomide and a “tiny” 5mg prednisone every other day to keep me from laying in the corner in a fetal position from the pain! The prednisone will probably circle back around to bite my butt one day, but right now, I don’t care. Have your docs put you on (or want to) anti-inflammatory for your PAH?

June 14, 2024
A myPHteam Member

If you're having trouble affording your pulmonary arterial hypertension (PAH) medications, here are some tips that might help:

1. Copay Assistance Programs
- Many drug manufacturers offer financial support programs. For example, Janssen CarePath helps cover costs for macitentan (Opsumit) for eligible health insurance Show Full Answer

If you're having trouble affording your pulmonary arterial hypertension (PAH) medications, here are some tips that might help:

1. Copay Assistance Programs:
- Many drug manufacturers offer financial support programs. For example, Janssen CarePath helps cover costs for macitentan (Opsumit) for eligible health insurance plans.

2. Specialty Pharmacies:
- Specialty pharmacies can negotiate out-of-pocket costs with health insurance companies and facilitate communication with drug companies to lower costs.

3. Drug Discount Cards:
- Use drug discount cards like GoodRx, NeedyMeds, RxSaver, and SingleCare to get reduced costs for many medications.

4. Nonprofit Foundations:
- Some nonprofit foundations provide financial assistance for specific drugs. Drugmakers may refer you to a foundation that supports people prescribed their medications.

5. Understand Your Health Insurance Policy:
- Knowing the benefits, limitations, and costs of your health insurance plan can help you choose a plan that minimizes your overall expenses. Plans with higher premiums but lower out-of-pocket costs might be more cost-effective in the long run.

If you still find it difficult to afford your medications, talk to your healthcare provider. They can connect you with financial assistance resources or refer you to a social worker who can help.

June 14, 2024

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