Linda, yes sometimes they will ask for an IRS statement page and a prior authorization from the prescribing physician, but they don’t care what money you have (or don’t have), because the meds are just plain ridiculously priced.

You do not have to be financially destitute to obtain assistance. I am on Medicare with a Part D plan with Humana. The medications are covered by my Part D plan, however, depending on the stage you are in the co-pays can be quite high. Fortunately, I was able to obtain co-pay assistance through The Assistance Fund (www.tafcares.org). The only information I had to provide was our annual income. Depending on your income, the amount you have to pay per PAH prescription is $0 or $10/month. I have been obtaining financial assistance from them since January 2023.

Talk with the office of the doctor managing your PH care. They typically have people that can help you with locating financial assistance. Also, the folks with the specialty pharmacy associated with your Part D plan are usually very helpful. Another good source is the PH Association. On their website you will find a list of financial assistance resources. They also have people within their organization that you can call for assistance.

The Assistance Fund - TAF

https://www.tafcares.org

I have used acredo for my asthma biologic shot each month. From the very beginning they offered a co pay assist, all I had to do was talk to them and it was set up, I did have to renew it a few months ago. They are very nice and will put you in contact with the people that run it.

Linda, there are several orgs that will find grants for your meds. I have used Healthwell Foundation for several years now. I am on disability so I don’t know if that makes a difference, but the drug makers themselves have programs for medications. Here are the ones off the top of my head: Healthwell Foundation ($10,000 a year for meds), Patient Assistance Fund, Patient Assistance Network, Good Days Foundation, and the Assistance Fund. They usually make the funds mostly at the beginning of each year. Contact them and they’ll tell you how to get in line early. (You can be on any or all of them, just waiting for the funds to be open). Hope it helps.

PH Clinics and PH Specialists tend to have the staff required to take care of grant applications, etc. Those PH patients seeing regular pulmonologists and/or cardiologists may have to do more of the paperwork and legwork themselves. My PH Clinic has 2 doctors, 1 social worker, 1 nurse dedicated as an insurance and foundation coordinator, 1 nurse dedicated to clinical care, 1 medical assistant who does the 6 minute walks plus all in person visit check-ins and 1 office coordinator. And they are looking to hire additional staff. It takes a lot of people to manage PH patients.