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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Else Have Hypoxia Besides PH? How Do You Cope, Are You On Oxygen 24/7?

A myPHteam Member asked a question 💭
East Kootenays, British Columbia
June 12, 2024
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A myPHteam Member

I’m updating my health status- I have PAH. Really working on getting off the oxygen. I’m also on Adempas and myrbetriq which I understand is good for PAH. If anyone out there has gotten OFF oxygen I would like to chat. I told everyone that I am living until I am 86!!!!!So there PAH leave me alone!! Great weekend upcoming to you all- God is my strength!!
..Sharon

June 14, 2024
A myPHteam Member

I use oxygen almost all the time if I walk 20 feet have to wear it sucks

June 13, 2024
A myPHteam Member

Yes. I have a cpap I use every night. Its at at high setting. I am not on oxygen.

June 13, 2024
A myPHteam Member

I too am hypoxic as well as having PH. I also have restrictive parenchymal lung disease and exchange gasses at just 52%. My PO2 from my arterial blood draw with oxygen use is only 71% a couple weeks ago.
Wishing you well, any questions just reach out to me.

June 12, 2024
A myPHteam Member

People with pulmonary hypertension (PH) often experience hypoxia. Coping strategies include:

- Oxygen Therapy: Some individuals require supplemental oxygen, which can be used intermittently or 24/7, depending on the severity of their condition
- Pulmonary Rehabilitation: Programs that teach breathing exercises and ways to Show Full Answer

People with pulmonary hypertension (PH) often experience hypoxia. Coping strategies include:

- Oxygen Therapy: Some individuals require supplemental oxygen, which can be used intermittently or 24/7, depending on the severity of their condition.
- Pulmonary Rehabilitation: Programs that teach breathing exercises and ways to improve fitness.
- CPAP Machines: Used by those with sleep apnea to help breathe at night.
- Support Networks: Engaging with communities like myPHteam for advice and emotional support.

Would you like more details on any of these strategies?

June 12, 2024

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