Hi Georgette, I have CTEPH and being treated on the same drug. I have good and bad days but my Dr said everyone is different but a lot of people are surviving 10yrs. I’m inoperable and had my Right hand side Cath done and my pressure was 75 soo high and he didn’t give me long then the drug kicked in and I also had a ballooning of the arteries in my right lung and now my pressure is 51. After 1 procedure. I probably need up to 6 though. Is the Pulmonary Rehab working? I haven’t started yet. Hope ur feeling ok. 🙏 There is hope and never give up. We can do it all. ❤️❤️

How long you live is really dependent on how well you respond to the medications and interventions to treat CTEPH, age, and other comorbidities. We all have an expiration date. Only God knows when it is. Many people with PH live well beyond the current life expectancy statistics.

Thank you so much. My pulmonologist and I agree I am not a good candidate for the surgery.