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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone With PAH Have Scleroderma Also?

A myPHteam Member asked a question 💭
Jonesboro, IN
January 12, 2024
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A myPHteam Member

Hello Pamela, my name is Cindy I have both PAH and scleroderma. I was diagnosed with scleroderma in 2016 and diagnosed with PAH in November 2022. For scleroderma I take cellcept and hydroxychloroquine.and for PAH I take sildenafil,opsumet and uptravi and furosmie. And meds seem to really be helping with both scleroderma and PAH. I want to welcome you also to the PH community. Wonderful people and wonderful information. ❤️

January 12, 2024
A myPHteam Member

Yes, many people with pulmonary arterial hypertension (PAH) also have scleroderma. In fact, connective tissue diseases like scleroderma are the most common cause of associated PAH. Studies estimate that between 7 percent and 19 percent of people with systemic scleroderma have PAH.

 This AI-generated response comes from myPHteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Scleroderma in PAH: 4 Facts To Know | myPHteam
Scleroderma and Pulmonary Hypertension: What's the Connection? | myPHteam
July 10, 2024
A myPHteam Member

Thanks

January 17, 2024
A myPHteam Member

Pamela945:
Yes, I have both Limited Systemic Sclerosis (Scleroderma) and Pulmonary Arterial Hypertension. I was diagnosed with both in 2012, but suspect I had them about 20 years before that, starting with a Raynaud's Phenomenon diagnosis in 1992. I had many issues in that 20 year period that could never be explained. Isolated issues that didn't seem to point to anything until 2012.

January 12, 2024

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