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I Have Interstitial Lung Disease, Ph And Right Heart Failure. Was Given Diuretics, Kidney EGFR Went To 14. Now Dr Won’t Treat Me. What To Do

A myPHteam Member asked a question 💭
Australia
January 4, 2024
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What Is Primary Pulmonary Hypertension? Read Article...
A myPHteam Member

I am so sorry to see you're going through this. I pray you'll get through this and come out a stronger person. It seems that doctors are overworked and don't have enough time to spend with all of their patients. It's a sad thing. My prayers are with you Audrey.

January 6, 2024
A myPHteam Member

Hi Audrey, the same thing happened to me right before Christmas. Did your doctor give you in options as who you should see? I'm so sorry to hear this is happening to you. Diuretics were given to me (Torsemine), but left me dehydrated. It's hard to understand the reasons a doctor would just stop seeing a patient. 😩

January 4, 2024
A myPHteam Member

Hi Doreen, no options. Just ‘you can come back later if you get unwell!’
I’ve only got 30% use of my kidneys yet kidney dr said similar.
I barely said a word at each appointment so I don’t think I could have upset either.
I feel quite rejected, how unwell do you have to be to get help?
Thank you for responding ☺️

January 4, 2024

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