Rubee
I'm not trying to be rude, but you need a better doctor. I would not leave my doctor's office without answers. "Could be" is certainly an unacceptable answer. My first pulmonologist was an idiot. Told me I would be dead in 2 years. Here 3 years later I'm doing well. The physician's I have now are great and I can't leave their office until THEY feel I know exactly what is going on with my health. They don't leave any stone unturned. They test, test and test and explain, explain and explain. The Lord has blessed me-leading me to the best healers.
I hope you can find a physician that can help you.
Treese

I would suggest finding a PH specialist. I have to travel over 400 miles to see mine, but it has made all the difference. No doctor should answer questions the way your doctor did. You should have answers when you leave your doctor's office and if not then he should be making plans to find out the answers for you. I totally agree with what Linda and Treese wrote to you. I live in a rural area and doctors here just don't know much about PH or PAH. I had a cardiologist diagnose me, then I found myself a PH specialist who I can trust and that doesn't let me leave his office until I have asked all of my questions, and he has answered them. You need a doctor who you can trust and who values you as a patient. I hope you can find one and that you get the answers you need.

Have you been able to check your blood preasure out……a home arm cuff is wonderful & accurate. It would be interesting in knowing if your blood pressure is toooooo low or tooooooo high……or just right

PAH is a rare form of PH. Definitely check your blood pressure. I would also get a new doctor, if this one doesn't answer your questions!

I should be able to come off blood thinners in 2 months because I had a watchman installed almost 4 months ago. My husband just got his first stent at 80 and as soon as it is healed he can go off blood thinners.