Is Anyone Taking Uptravi For Their PAH And Has It Worked For Them?
I'm due to start it later this week and would love to connect with someone who is on it already to share how it's working.
So far; so good, Cindy. I will probably be titrating up to 800mic next week since I haven't had any symptoms during my first week. Let's keep in touch to support each other!!!!!
I take 1000 micg twice a day. It is a challenge to titrate up to it. It has made a tremendous difference in my like. I can go grocery shopping go to a restaurant, swim. But the journey is rough. I still suffer with stomach issues and diarrhea but to get some normal days of happiness I'll keep fighting. I haven't went over the 1000 micg they are doing well and I'm trying to get comfortable before I try to go up again. Good luck!!! It gets easier. It does get rough before it get better but the results are amazing. I feel so blessed to have been given it.
Up tp 1000 0nce per day. On Plavix and that makes it a little stronger. Having trouble making red blood cells and just had a bone marrow biopsy, results take 3 weeks.
Working on 800 at his point, back pain, and off and on diarrhea, taking it slowing one day at a time.
Into 2nd week and doing okay, aches pains and strange things but don't seem to last. We'll see as I progress up the ladder. I pray it lowers my pressure. My blood pressure has not dropped since I've been on it, still taking all my other meds,I'm starting with only one Uptravi a day, 3 days on 400.
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