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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Breathing Getting Worse On Opsumit:

A myPHteam Member asked a question 💭
Manalapan, NJ

I just started to take 10 mgs of Opsumit and have taken it for 5 days.
I thought maybe today, my breathing wasn't as good as it usually is. I could be wrong, but I am asking if anyone has had their breathing getting worse on this drug?

April 19, 2023
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A myPHteam Member

Except when I was taking Uptavi and had a severe reaction and had to be taken to the hospital have I used oxygen. I have never used it at home and I still don't. I no longer take Uptavi either.
I've been on Opsumit nearly a year and have had no bad side effects.

October 24, 2023
A myPHteam Member

I think I am on oxygen more now than before I took Opsumit

October 22, 2023
A myPHteam Member

Thanks for your response. I'm on it for 11 days.
I have a bit of leg swelling, m.j uch more out of breath and diahrrear which I take Immodium for.
I am an active person, so if I go out, it seems I have to take Immodium so I don't have any embarassing moments.
My pressure, pulsox and weight are ok.
I thought the Opsumit would help my brearhing, but hopefully it will resolve, when my body gets used to it.
Joan

April 26, 2023
A myPHteam Member

Find out about the temporary side effects. Usually they dissipate after a few weeks.
Paperwork usually comes with all medications for your education. Read it!

April 26, 2023
A myPHteam Member

Im on Opsumit 10 days and my feet are swollen. I've had diahreah, but I am concerned about my legs.
I sent photos to my nurse who forwarded the photos to the dr, and they dont seem to think it is serious. Im upset about it.
After my body gets used to the drug, is there a chance the swelling go down.
I hope I dont get really sick on this medicine. I am taking bloodwork soon, so I'll see if there are any problems.
Has your breathing got any worse?
Im also on Tadalifal which has helped me, but Opsumit is a big adjustment.
Have you had any swelling of the legs at all?
Joan

April 25, 2023

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