Mary and Norma, you are super lucky not to have symptoms. I know of someone with a level of 100 and no symptoms, but it should not be left untreated (she is on heavy meds since it’s life threatening at that level, even if no symptoms - her first doctor did not know how to treat, but thankfully he called a doctor who knew the disease and that doctor admitted her immediately to ICU and started treatment). Mary, what is your level? Norma, 65 should not be ignored. If I was you, I would look for the best pulmonologist or cardiologist in your area that specializes in PH. Echo can be inaccurate as it’s an estimate, but 65 is not borderline or anything. Most pulmonologists and cardiologists do not know how to treat this condition. I saw a cardiologist and she did not know what to do about the PH on my echo (41), but treated symptoms. I saw PH cardiologist and he immediately started treating me to get the levels down and retested with echo 2 weeks later to see if the meds is working for me and if my levels came down (it did to 27). I also (before this doctor saw a pulmonologist specializing in PH who told me it was nothing), so even among PH specialists, there can be different approaches. Search for the best doctor and see as many as you need to, but ensure you get treatment. The sooner they treat it the better. If you’re level below 30 on echo, it’s different - I think, I can be wrong - as it’s near normal, but I would look for treatment if I was you. My symptoms improved a lot with treatment as well. Meds can lower levels and the meds I am on now (amlodipine) does not even give me any side effects. I think early treatment can change disease progression and outcome. Find a doctor that will treat it and do not wait for symptoms. Try to find out what type of PH you have (5 types) and search for a good doctor, it is worth the effort.

This group has answered so many questions for me. Like why my ribs feel like Im being squeezed. Why my legs get tired so quick. I think Im ok just a walk to the kitchen and find myself tired and weak. I cant tell you how long I thought i could go shopping and I cant.

Hi Norma, if you are on amlodipine and your level still 65 after being on it, I would (if I was you) still def go find a PH cardiologist. Something I read today is that very high levels can damage your heart and lungs (permanently). I would rather err on the side of caution and make sure that level gets lower. I read in an article today (on this site), not sure how accurate it is, but it said the normal level for pulmonary pressure is 12 and levels over 20 is considered pulmonary hypertension. I think earlier treatment helps so that it does not progress so fast. Not everyone is the same, some at lower levels are very symptomatic and others with level as high as 100 does not have any symptoms, but the absence of symptoms should not stop you from getting treatment.

That's the best thing to do. When we try to do some type of activity we feel better. I had covid and everything changed. But I must try to keep doing something for my mental and physical help. We should all do what we can or at least try.

I hear you, its exhausting. I feel the same these days about Dr. appointments. I'm still in the phase where its sometimes seen as my imagination. I just had a stroke and went for hospital visit follow-up (after 6 days in hospital). I said that I am dealing with extreme fatigue (like I cannot function) and I get SOB and CP doing things like tying shoe laces. The doctor's actual best explanation was that maybe I am stressed and gave me an anxiety test (usually this would make me mad, but honestly, too tired to care).. I did score a zero on the anxiety test, then she said maybe I am depressed. I only had severe fatigue on that and being out of energy. So she said, maybe I am stressed about stuff I do not know I am stressed about and internally without me knowing stressing about it and maybe that is the reason for my symptoms and maybe I can benefit from seeing a cognitive behavioral therapist. So I said that I am coping well with my stress and I am ok and no thanks... I hate it when doctors don't believe you. So I think this doctor, think I had an imaginary stroke, have an imaginary hole in my heart and now have imaginary symptoms. I am seeing internal meds at the hospital, so I get a different doctor each time I book (which is really annoying). I'm considering finding a good PCP that will be the same doctor each time... cause its exhausting to try and reexplain each time what is going on and then have a doctor that think you are not really having those symptoms cause you look ok.