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Medicines

A myPHteam Member asked a question 💭
Framingham, MA

I will be going in hospital soon to start the IV therapy. Very nervous and anxious don’t know what to expect. My family will not be able to visit because of Covid so staying alone in a hospital bed and have no idea what to expect has done a job on my mind
How has everyone else coped with this kind of situation
I have been dealing with PAH for awhile now and it seems to be getting worse. I also have bad lungs and a disease called scleroderma which I have had since being in my 30’s. I am a… read more

February 11, 2022
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A myPHteam Member

Here are some medications for pulmonary hypertension (PH) and pulmonary arterial hypertension (PAH) mentioned in the knowledge base:

1. Macitentan - Manufactured by Janssen Pharmaceuticals
2. Selexipag - Manufactured by Janssen Pharmaceuticals.
3. Bosentan - Developed by Janssen Pharmaceuticals.
4. Epoprostenol Show Full Answer

Here are some medications for pulmonary hypertension (PH) and pulmonary arterial hypertension (PAH) mentioned in the knowledge base:

1. Macitentan - Manufactured by Janssen Pharmaceuticals.
2. Selexipag - Manufactured by Janssen Pharmaceuticals.
3. Bosentan - Developed by Janssen Pharmaceuticals.
4. Epoprostenol (injectable) - Developed by Janssen Pharmaceuticals.
5. Ambrisentan - Available through Fairview Specialty Pharmacy.
6. Sildenafil - Available through Fairview Specialty Pharmacy.

These medications are available through various specialty pharmacies, which offer additional services such as free delivery, refill reminders, and financial assistance programs.

July 30, 2024
A myPHteam Member

Yeah Docs hesitate to give Prednisone for anything but it does seem to make everything better. We can't live on it because it can hurt kidneys etc. But during flare ups it really is great!

March 15, 2022
A myPHteam Member

I too have scleraderma and pH. I take triledgy inhaler and sidenafil. The triledgy makes me cough a lot. It's a dry hacking cough iam retired so iam able to rest anytime I need. I was taking prednisone for another problem for 7 days. I could breathe so much better. But my understanding is that you can't take prednisone very often.

March 6, 2022
A myPHteam Member

I am on sub q remodulin for approx. 3 weeks. Has improved my breathing quite a bit but I find I still have to try to get that keep breath when I walk and struggle to get a full breath. Sitting no problem. My lungs are a mess also.
I don’t know if this is as far as the medicine will work. Does anyone else have a similar problem.

March 5, 2022
A myPHteam Member

That's terrible! So sorry dear.

March 3, 2022

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